HomeAbout UsDisclaimerContact UsResourcesSymptomsFactsTestingDiagnosisPreventionLyme DietPersonal StoriesFriendsGame Room

Bookmark
         and Share

Welcome To Lyme Disease Awareness.org !

This site was created to help people searching for answers about Lyme Disease find them. Lyme Disease is a very serious disease and Awareness & Prevention are very important in keeping yourself & your loved ones safe! Nature is Beautiful & We all love to spend outdoors enjoying various activites, but we all need to learn how to protect ourselves from Lyme Disease. This site is here to help people learn prevention & what to do if you or a loved one unfortunately contracts the disease. Please feel free to email us anytime with any questions you may have @ Info@LymeDiseaseAwareness.org  The more people that can be made aware of the disease, how to prevent it, how to test for & treat it, the better off we all will be! Our site is completely free - we do not charge antything for the information we provide. We do link to other sites that we find helpful, some that do charge, and products that are for sale. This information has been compiled over the last 10+ years by a Lyme Disease Sufferer, who is also a Nurse, while searching for the proper diagnosis of Lyme Disease. Please browse the entire site - there is alot of information & feel free to contact us anytime via email with any questions.

Find Lyme Literate Doctors (LLMD) Here

LYME PETITIONS

Please Read and Sign

Petition Against ISDA Guidelines:  http://www.lymediseaseassociation.org/referral/Petitions/Petition.php?id=1

 Petition For New York State Residents: http://www.petitiononline.com/StopLyme/

PRESS RELEASE FROM VIRAL GENETICS - An injection called VGV-L has been developed to treat Lyme disease, an illness that saw a 100% increase in CDC-confirmed cases from 1991 to 2006. Animal studies have been completed with positive results. We are now in the process of introducing our research to the FDA. http://www.viralgenetics.com/pr_021110.html

New Lyme Disease Map Project - If you have Lyme Disease or know someone that does,

Please visit the site and share your story and location.

Click Here To Go To Lyme Map Project Website

The CDC has just published its 2008 Lyme Disease case numbers.

Lyme Disease continued its steep rise in 2008, as the CDC posted a final tally of 35,198 reported cases, a 28% increase over the previous year. Looking at a two-year timeframe, cases increased by 77% from 2006 to 2008. According to CDC epidemiologists, these reported cases are underestimated 6 to 12 fold due to inherent flaws in its passive reporting system. So, the actual number of new Lyme Disease cases in 2008 may total upwards of 420,000. And many Lyme Literate Physicians believe that the real numbers may be even higher.

Here are the states with the most reported Lyme Cases in 2008:

TopLymeStates2008.jpg

Meanwhile, as the number of Lyme Disease sufferers continues to climb by double-digits the silence from both the CDC and mainstream medicine is deafening. If the CDC reported an increase of 77% for AIDS, wouldn’t it be on the cover of every newspaper and medical journal in America? So what’s going on with Lyme Disease?

LymeCases2008CDC.jpg

The problem is that most people and frontline physicians believe that Lyme Disease is a trivial, over-diagnosed illness that can be cured with 2 weeks of antibiotics.The reality is that untreated or undertreated Lyme Disease can result in a serious neurological infection, similar to syphilis, for which we have no accurate tests and a poorly defined set of symptoms. Information and research on this disease has been controlled by a small group of academic researchers, operating under the legal protection of the IDSA, who have conflicts of interest in Lyme-related vaccines, test kits, and the very definition of the disease.  Much to the frustration of Lyme patient advocacy groups, the CDC has allied itself to the narrow IDSA view of Lyme disease, and has repeatedly refused to incorporate new diagnosis and treatment information onto its website.In light of this new evidence, it’s clear that the latest revision to the CDC Lyme surveillance criteria is akin to putting a butterfly band-aid on a cut to the femoral artery. The new regime at the CDC needs to look more accurate ways of tracking Lyme disease. With chronic disease accounting for 80% of our nation’s health care costs, our public health system needs to know how many of our citizens are suffering from both the acute and chronic forms of Lyme disease.

The tragedy of this broken reporting system is that it is ruining lives. Physicians make clinical decisions based on the CDC case numbers, and if they think that Lyme Disease is rare in their area, they may not consider it as a differential diagnosis. Better Physician Education & Guidelines are needed. No one is immune from this horrific disease. We are all at risk. Please educate yourself and your loved ones on prevention and see a Lyme Literate Physician ASAP if you do have symptoms that could be Lyme Disease. Early Treatment is Imperative to a full recovery!

Under Our Skin In Theatres!

UNDER OUR SKIN exposes the hidden story of Lyme disease, one of the most controversial and fastest growing epidemics of our time. Each year, thousands go undiagnosed or misdiagnosed, often told that their symptoms are "all in their head." Following the stories of patients and physicians fighting for their lives and livelihoods, the film brings into focus a haunting picture of the health care system and a medical establishment all too willing to put profits ahead of patients. UNDER OUR SKIN is being shown in select cities nationwide throughout the year. This is the chance to get the issue of Lyme Disease before a mainstream audience and eduxate the public. Everyone must come out in numbers so that the film will open in more and more markets, increasing exposure and awareness.

Click Here To Find A Theatre Showing UNDER OUR SKIN In Your Area!

Click Here For Lyme Disease Letter Sent To County Health Department

Share Your Lyme Disease Story With Barack Obama - Organizing For Health Care

Share your personal story about the importance of health care reform in your life and the lives of those you love to build support for health care reform.

 

Share Your Story Here!

IDSA July 30, 2009 Hearing of the Lyme Disease Review Panel

On July 30, 2009 , IDSA held an all-day hearing of its Lyme Disease Review Panel to hear testimony from patients, physicians and scientists on its 2006 Lyme Disease Guidelines.  Individuals presenting and the order in which they presented follows:

  1. Tina Garcia, Lyme Education Awareness Program Arizona (L.E.A.P. Arizona, Inc.), Mesa, AZ
  2. Lorraine Johnson, JD, MBA, California Lyme Disease Association (CALDA), Ukiah, CA
  3. Daniel Cameron, MD, International Lyme and Assoiciated Diseases Society (ILADS), California
  4. Phillip Baker, PhD, American Lyme Disease Foundation (ALDF), Bethesda, MD
  5. Ben Luft, MD, The State University of New York, Stony Brook, NY
  6. Allison Delong, ILADS, Providence, RI
  7. Barbara Johnson, PhD, Centers for Disease Control and Prevention, Fort Collins, CO
  8. David Volkman, MD, Nissequogue, NY
  9. Sam Donta, MD, Falmouth, MA
  10. Eugene Shapiro, MD, IDSA & Yale University School of Medicine, New Haven, CT
  11. Brian Fallon, MD, Columbia University Medical Center, New York, NY
  12. Sunil Sood, MD, Schneider Children's Hospital at North Shore, Manhasset, NY
  13. Ken Liegner, MD, ILADS, Armonk, NY
  14. Allen Steere, MD, Massachusetts General Hospital & Harvard Medical School, Boston, MA
  15. Steven Phillips, MD, ILADS, Wilton, CT
  16. Arthur Weinstein, MD, Washington Hospital Center, Washington, DC
  17. Raphael Stricker, MD, ILADS, San Francisco, CA
  18. Gary Wormser, MD, IDSA & New York Medical College, Valhalla, NY

The Hearing can be veiwed via webcast from the IDSA Website www.idsociety.org/lymedisease.htm and will be archived on the web for viewing at your convenience for a year. 

It is very interesting and informative. It may have been best said by Dr. Ken Liegner - This is a formidable pathogen, "We have to be humble before this disease."


 

Lyme Disease Is...

Lyme disease is an infection transmitted by the bite of ticks carrying the spiral-shaped bacterium Borrelia burgdorferi. The disease was named for Lyme, Connecticut, the town where it was first diagnosed in 1975 after a puzzling outbreak of arthritis. The organism was named for its discoverer, Willy Burgdorfer. The effects of this disease can be long-term and disabling unless it is recognized and treated properly

An inflammatory disease caused by the spirochete Borrelia burgdorferi transmitted by ticks and characterized initially by a rash followed by flulike symptoms including fever, joint pain, and headache; if untreated, it can result in chronic arthritis and nerve and heart dysfunction.

An acute, recurrent inflammatory infection transmitted by a tick-borne spirochete,
B. burgdorferi. Knees, other large joints, and temporomandibular joints are most commonly involved, with local inflammation and swelling. Chills, fever, headache, malaise, and erythema chronicum migrans (ECM), which is an expanding annular, erythematous skin eruption, often precede the joint manifestations.
An acute, often recurrent, polyarthritis of dogs and humans caused by the spirochete Borrelia burgdorferi, and transmitted by the tick Ixodes dammini. The disease is endemic in the northeast and certain other areas of the United States.
Stage I Erythema chronicum migrans Rash stage, associated with tick bites and confined to Northern Europe until 1970 when the first US cases were described, presenting as a solitary reddish papule and plaque with centrifugal expansion–up to 20 cm, peripheral induration and central clearing, persisting for months to years; potentially pruritic with IgM and C3 deposition in vessels.
Stage II Cardiovascular–myocarditis, pericarditis, transient atrioventricular block, ventricular dysfunction; neurologic–Bell's palsy, meningoencephalitis, optic atrophy, polyneuritis symptoms .
Stage III Migratory polyarthritis Lyme disease may be accompanied by headache, stiff neck, fever, and malaise that is subsequently manifest as migratory polyarthritis, intermittent oligoarthritis, chronic arthritis of the knees, chronic meningoencephalitis, cranial or peripheral neuropathy, migratory musculoskeletal pains, cardiac abnormalities, etc. 

There are many varying definitions of Lyme Disease. It is a controversial topic in the medical community. One thing everyone does agree on is that Awareness needs to be increased because prevention is the key to keeping yourself and your loved ones safe.

Have a Happy & Healthy 2013!